LUDHIANA: A bike rally was organised in the city to spread awareness about Muscular Dystrophy especially Duchenne Muscular Dystrophy (DMD). About 60 riders from different groups including Nomads on Wheels participated in this rally which started from Neuromuscular Center of Excellence, Christian Medical College and Hospital (CMCH) Ludhiana and ended at Sarabha Nagar Market.
Several other events were also organised under this awareness campaign which were held at the CMC which included a food festival and several games to engage students and educate them about this condition. At Sarabha Nagar market cultural programme with games, skit, song and dance to educate the people about DMD and need to provide high quality care to the children suffering from it. Dr William Bhatti, Director CMC and Dr Jeyaraj Pandian, Principal and Acting Head of Neurology at CMC, who is also a Paediatric Surgeon said that such events are very much needed in this part of the country where the awareness of such disorders is very less and children go without treatment and continue to suffer needlessly when treatment is available.
Dr Vineeth Jaison, In-charge of Neuromuscular Center of Excellence at CMC said, “The children suffering from DMD need early detection and multidisciplinary care. These are complex disorders challenging to treat especially by a single clinician but with the support of several departments we have been able to set up a comprehensive multidisciplinary team to care for these children as well as minimise their waiting time and to prioritise their care in the Hospital”
Rajdeep Singh from Nomads on Wheels bikers group expressed his solidarity to stand with children and their families in the need to spread awareness about this disease to various schools and colleges as well to ensure the children are well taken care of in society.
What is DMD
DMD is a genetic disease which affects young male children, they develop progressive weakness of upper and lower limbs including the heart and lung muscles. In India, without treatment they become wheelchair dependent by 10 years of age and die due to breathing difficulty or heart problems by 15 years. In developed countries where they have good surveillance of this disease especially with early detection at 2 years followed by care in a multidisciplinary team with support for assisted living, children grow into young adults and many live into their 30’s and 40’s.
Several other events were also organised under this awareness campaign which were held at the CMC which included a food festival and several games to engage students and educate them about this condition. At Sarabha Nagar market cultural programme with games, skit, song and dance to educate the people about DMD and need to provide high quality care to the children suffering from it. Dr William Bhatti, Director CMC and Dr Jeyaraj Pandian, Principal and Acting Head of Neurology at CMC, who is also a Paediatric Surgeon said that such events are very much needed in this part of the country where the awareness of such disorders is very less and children go without treatment and continue to suffer needlessly when treatment is available.
Dr Vineeth Jaison, In-charge of Neuromuscular Center of Excellence at CMC said, “The children suffering from DMD need early detection and multidisciplinary care. These are complex disorders challenging to treat especially by a single clinician but with the support of several departments we have been able to set up a comprehensive multidisciplinary team to care for these children as well as minimise their waiting time and to prioritise their care in the Hospital”
Rajdeep Singh from Nomads on Wheels bikers group expressed his solidarity to stand with children and their families in the need to spread awareness about this disease to various schools and colleges as well to ensure the children are well taken care of in society.
What is DMD
DMD is a genetic disease which affects young male children, they develop progressive weakness of upper and lower limbs including the heart and lung muscles. In India, without treatment they become wheelchair dependent by 10 years of age and die due to breathing difficulty or heart problems by 15 years. In developed countries where they have good surveillance of this disease especially with early detection at 2 years followed by care in a multidisciplinary team with support for assisted living, children grow into young adults and many live into their 30’s and 40’s.